In collaboration with the world's largest online penile cancer support group, the authors created a simple, anonymous survey to highlight and discuss some of the current problems experienced globally by men who have been diagnosed and treated for penile cancer over the last 5-10 years.
The world's largest online penile cancer support community group, https://www.facebook.com/groups/penilemelanoma/, was used.
There are several problematic areas in providing psychological and peer support for patients with penile cancer, which could be improved by a collaborative approach from health care professionals and third-sector organizations.
A patient-led insight into some of the current unmet needs of men treated for penile cancer for clinical practice.
Seminars in oncology nursing. 2022 May 19 [Epub ahead of print]
Rob Cornes, Wayne Earle
Orchid Male Cancer Charity, London, UK. Electronic address: ., Survivor, advocate and chairman of Check Your Tackle Charity, Silverdale, NSW, Australia.